Since the summer of 2000 cluster headaches have accompanied me in my life, and this more exotic pain – also known as ‘destruction headache’ – can really make you crazy in its grievous form and concerns more males than females (as for example the German author Franz Kafka, US president Thomas Jefferson or the Harry Potter actor Daniel Radcliffe).

So far no scientific research in this regard, and I have really tested all what was recommended by doctors or what I found being suitable like osteopathy – so medical oxygene for inhalation is always at my home which will however only ease the whole complex a little bit. A lot of symptoms conform with migraine (like hypersensitivity concerning light and any kind of noise), but typically cluster headaches do occur in the night (after 10 p. m.) when you start sleeping, in the middle of the night or even in the very early morning as an ugly wake-up-call. But all day long this usually does not happen.

The ‘cluster’ can be so dominant that you get simply paralyzed. Such a pain attack usually has a length of 30 – 60 minutes and can happen once or many times per night (my maximum was 4 attacks per night), so the lack of sleeping gets a real problem after some time because a night without an attack is seldom during a ‘cluster’ which can happen anytime in the year irrespective of the season or where to be.

These headaches set the whole body and mind also into a state of panic, and when you follow this panic and fall deeper into it, all is getting worse especially the intensity of the aches which are in my case only on the left half of my face (eye-region). This is accompanied by a complete stressed left eye, moreover the mucosa in the nose are heavily swollen together with a pulsating ache in the left sinus. During these times the area of the cheek is somehow inflamed and uptight.

After such an attack I often feel as if someone had roughly swept my nerves and brain besides tiredness. A ‘cluster’ lasts normally at least 4 – 6 weeks or sometimes longer driving concerned people like me after some time to a fundamental physical and nervous exhaustion. The good thing, however, after such a challenging and also horrible ‘cluster’ there won’t be any problems for 1 – 3 years in my case, but it needs always some time to recover from such a stressful episode.

At the moment I am happy and cluster-free for around 10 months, otherwise I would not be in a position to write and publish all this here.




  1. Awful. As a former (hooray!) migraine sufferer, I can only begin the imagine the more frequent horrors of cluster headaches. For me, growing older brought relief. I hope the same can be said for you, and that you don’t need to get very much older.

    Liked by 1 person

    • Thank you for your kind understanding, in fact ostheopathy really has improved the whole matter to a substantial extent, and there are still options (kinesiotaping and lymphatic drainage) not being tested by me. Not giving up is the most important in this regard.


  2. I am very sorry to hear about the pain you suffered from your cluster headaches. Is there nothing that doctors can do to help you to ease the pain? It must be absolutely horrible not knowing when it will strike again. Best wishes! Peter

    Liked by 1 person

    • Doctors are not of real great help, but usually osteopathy supports me a lot. It was much worse 10 years ago. Thanks for reading this not so nice stuff. Next posts will be definitely different.

      Liked by 1 person

  3. I never knew of such kind of a headache. This is informative but I can understand your situation of having to live with something so terrible. The thought of it happening only at very long gaps is some respite. Have you thought of alternative treatments, like Yoga, Homeopathy, Ayurveda?

    Liked by 1 person

    • Relaxing methods not of help before sleeping: I know especially hypnotical trance and Reiki (1st degree). Breathing techniques from Yoga have sometimes helped to make it more bearable. This is a crazy and irrational burfen without real patterns or reasons. Next time I will certainly visit a hypnotical therapist, this mental technique suits me the best. Thank you very much for your appreciation and kind ideas.

      Liked by 1 person

    • I usually do not think about it because I try to avoid giving this exotic suffering too much place in my life which is 95 % cluster-free in the last 20 years. I will not stop looking for healing possibilities, some day this must lead to final success.

      Liked by 1 person

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